San Antonio Express-News,
SAN ANTONIO (AP) – Doctors are working towards a diagnosis and care plan for a baby boy who has spent the first three months of his life in hospitals After he was born without skin.
Ja'bari Gray has been hospitalized since his birth on Jan. 1 at the Methodist Hospital in San Antonio, the San Antonio Express-News reported. With the majority of his skin missing, except for his head, he was initially diagnosed with aplasia cutis, a rare congenital absence of skin.
3-month-old Jabari Gray was born without skin from the neck down. It's a serious case of a rare skin disease known as "Aplasia cutis." His mom, an employee at @TacoCabana next to our station, is asking for your help. The family needs prayers and donations -> https://t.co/VUeu7sPDLP pic.twitter.com/xrTe0ylpX7
̵1; Ariana Lubelli (@ArianaLubelliTV) April 5, 2019
After he was transferred to the Texas Children's Hospital in Houston, there were tentatively diagnosed him with epidermolysis bullosa, a rare genetic connective tissue disorder that leaves the skin extremely fragile and subject to blisters and tears even from minor friction or trauma.
Ja ' His mother, Priscilla Maldonado.
"They're," he said, "they're I'm just really focused on keeping him comfortable right now, "she said.
She said she and her husband, Marvin Gray, are undergoing genetic testing to confirm the diagnosis, since the disease is inherited.
" It could be two to three weeks before them have an answer They do not want to treat my son for the wrong thing, "Maldonado said.
She and Gray have two other children, ages 5 and 6, who staying with Maldonado's mother while the couple watches over their baby. 19659004] "I've been able to hold him twice, but you have to be dressed in a gown and gloved up. It's not skin to skin, it's not the same, "Maldonado said.
Doctors plan to perform surgery to cut scar tissue that is fusing Ja'bari's chin to his chest. His eyes have also been fused since birth. Medicaid is covering some of the child's medical expenses, Maldonado said, and the family is getting help from Taco Cabana, which employs both parents. There is also a GoFundMe account set up.
Maldonado said doctors have not told how much longer Ja'bari will need to remain in hospital.
"Even if he does pull through, we do not know what the future holds , "The mother said. "We're just praying every day." Every day is a blessing. "